Whether you are a person with younger onset Alzheimer’s disease, a family member, friend, or members of the larger community, there are resources to support you.
The National Institute on Aging
The National Institute on Aging offers many free publications. The government’s portal has information on Alzheimer’s disease and related dementia care, research, and support.
Rush Alzheimer’s Disease Center
The Rush Alzheimer’s Disease Center (RADC) is one of 29 Alzheimer’s centers in the U.S. designated and funded by the National Institute on Aging. It focuses on research, education and family care.
Dementia Friends USA is a global movement that is changing the way people think, act, and talk about dementia. Developed by the Alzheimer’s Society in the United Kingdom, the Dementia Friends initiative is underway in the USA. By helping everyone in a community understand what dementia is and how it affects people, each of us can make a difference for people touched by dementia.
Dementia Friendly America
Through the work of over 35 national, leading organizations, the Dementia Friendly America initiative is catalyzing a movement to more effectively support and serve those across America who are living with dementia and their family and friend care partners. The lead organizations represent all sectors of community and are collectively leveraging their national reach to activate their local affiliates, members and branches to convene, participate in and support dementia friendly community efforts at a local level.
For People with Younger Onset Alzheimer’s Disease
The Alzheimer’s Association has a section that discusses Younger / Early Onset Alzheimer’s Disease and Dementia.
Dementia Alliance International
Dementia Alliance International (DAI) is a collaboration of like-minded individuals diagnosed with dementia providing a unified voice of strength, advocacy, and support in the fight for individual autonomy for people with dementia.
Dementia Mentors is a website which provides community for those living with Alzheimer’s disease.
The National Institute on Health
The NIH offers a free manual (available in both English and Spanish) for those caring for someone with Alzheimer’s disease.
Family Caregiver Alliance
Resources Created by Without Warning Members
The Years of Disorder: A Journey Through Dementia
Written by Penny Bredemeier Kirchner